March 24, 2003 

Dear Senator/Representative,

The undersigned organizations declare their support of the Hepatitis C Epidemic Control and Prevention Act. The Act amends the Public Health Service Act to direct the Secretary of Health and Human Services to establish, promote, and support a comprehensive prevention, research, and treatment program for Hepatitis C Virus infection.

Hepatitis C Virus (HCV) is the most common blood-borne infection in the United States. Once infected, most individuals remain persistently infected, with 70% developing chronic liver disease and its often life-threatening sequelae. Conservatively estimated, nearly 3,000,000 Americans have chronic Hepatitis C today, with 35,000 new infections occurring every year.

Hepatitis C is a national epidemic without financial resources according to a recent report from the National Institutes of Health. The Centers for Disease Control estimates that the death rate from HCV-related liver disease will triple by the year 2010. No other disease is expected to increase its burden as rapidly as Hepatitis C in the coming decade. Disease specific interventions are needed immediately. The Hepatitis C Epidemic Control and Prevention Act directly addresses these critical unmet needs through:

· Education and Training implement a program to heighten awareness and enhance knowledge and understanding of Hepatitis C.

· Medical Management ensure that HCV-positive persons identified through HCV counseling and testing programs have access to medical evaluation and management, including currently recommended antiviral therapy when appropriate.

· Clinical Research Network establish and support a Hepatitis C Clinical Research Network for the purpose of conducting research related to natural history, epidemiology, prevention and treatment.

· Seroprevalence Study ensure that a seroprevalence study is conducted to estimate the current and future impact, nationally and regionally, of HCV.

· Hepatitis C Disease Control promote and support state and local HCV counseling, pharmaceutical treatment, testing and prevention programs.

· Immunization promote and support state and local programs to vaccinate HCV infected persons, or at risk of infection, against Hepatitis A and Hepatitis B.

· Hepatitis C Coordinators support provision of Hepatitis C Coordinators to each state and large metropolitan health department to provide the additional management, networking, and technical expertise needed.

· Underserved and Disproportionately Affected Populations promote expanded support for persons with limited access to health education, testing and health care services and groups that may be disproportionately affected by HCV.

We urge you to make Hepatitis C your leading health priority. We look forward to your support of the Hepatitis C Epidemic Control and Prevention Act being introduced this session.

Sincerely,

Lorren Sandt, Executive Director
Hepatitis C Caring Ambassadors Program, Inc.
Oregon City, OR

Andi Thomas, Executive Director
Hep-C ALERT, Inc.
Miami, FL

Sharon Phillips, Executive Director
HepCAN, Inc.
Longview, TX

Linda J. Bird, President
Hep C Education and Support Network, Inc.
Locust Grove, VA

Ann Jesse, Executive Director
Hep C Connection, Inc.
Denver, CO

Sue Simon, CEO
Hepatitis C Association, Inc.
Scotch Plains, NJ

Helen Clark, President
LiverHope, Inc.
Minnetonka, MN

Phyllis Beck, Executive Director
Hepatitis C Awareness Project / National HCV Prison Coalition
Eugene, OR

Barbara Veres, Publisher Hepatitis Magazine
Hepatitis Support Association, Inc.
Houston, TX

Brian Klein, MA, LMSW, Founding Member
Hepatitis C Action & Advocacy Coalition (HAAC-SF),
San Francisco, CA

Bruce Burkett, President
Missouri Hepatitis C Alliance
Centralia, MO

Lama AK Palmo, Executive Director
Frontline Hepatitis Awareness
Monroe, WA

Michael Ninburg
Hepatitis Education Project,
Seattle, WA

Pat Buchanan, Vice President
LiverHope Inc.
Minnetonka, MN

Joey Tranchina, Executive Director
Hepatitis C Global Foundation & Aids Prevention Action Network
Redwood City, CA

Alan Franciscus, Executive Director
Hepatitis C Support Project Editor-in-Chief, HCV Advocate
San Francisco, CA

James Learned
Hepatitis C Action & Advocacy Coalition New York (HAAC/NY),
Brooklyn, New York

Terry Baker, CEO
Veterans Aimed Towards Awareness
Wilmington, DE

Alfred M. Prince, MD., Chairman
Hepatitis Research Foundation
Poughkeepsie, New York

Frederick W. Christie, Director
Hepatitis C Organization for Prevention & Education (HOPE)
Washington, D.C.

Allan Clear, Executive Director
Harm Reduction Coalition
Washington, DC

Joyce A. Rivera, Executive Director
St. Ann's Corner of Harm Reduction
Bronx, New York

Gary R. Rose
Title II Community AIDS National Network Hyde Park Communications
Hyde Park, NY

Luciano Colonna, Executive Director
Harm Reduction Project
Denver, Co & Salt Lake City, UT

Thelma Theil
Hepatitis Foundation International
Silver Spring, MD

Dan Bigg,
Chicago Recovery Alliance
Chicago IL 

Cheryl Blankenship Kupras, LCSW, Psychiatric Social Worker II Santa Clara County, Department of Alcohol and Drug Services Central Valley Clinic,
San Jose, CA

Monica Farina RN, MS, President
Connecticut Association of Public Health Nurses
Meriden, Connecticut

Robert T O'Brien
Philadelphia County Coalition for Prison Health Care (PCCPHC)
Philadelphia, PA

Allison Dinsmore
ACT UP Philadelphia Philadelphia, PA

Cindy Bolden Calhoun, Executive Director
Community Health Awareness Group
Detroit, MI.

Mark Harrington, Executive Director
Treatment Action Group
New York, NY

Philip G. Curtis
AIDS Project Los Angeles Government Affairs
Los Angeles, CA

Ethan Nadelmann , Executive Director
Drug Policy Alliance
New York, NY

Billy Russo, Executive Director
Douglas County AIDS Council/HIV Resource Center
Roseburg, OR.

Timothea Beckerman
Siren To Wail Music With A Message
New Orleans, Louisiana

Ann Ferguson, RN
AIDS Care Group of Chester
Chester, PA

Laurie Schowalter, MPH
National Alliance of State and Territorial AIDS Directors
Washington, DC

Julie Davids, Director
Community HIV/AIDS Mobilization for Power (CHAMP)
New York , NY.

Bob Tracy, Director
Community Affairs & Education Minnesota AIDS Project
Minneapolis, MN

Ellen Supplee, Client Services/Prevention Case Manager
United Communities AIDS Network
Olympia, WA

Adana Burke-Hooten, Director
Community Care Management UPMC Lee Regional
Johnstown, PA

Jenine Guerriere, Program Coordinator
Harm Reduction Coalition
Oakland, CA

Rebecca Ballard
H.O.P.E. Testing ARMAROK
Tulsa, OK

Casey Cook, Executive Director
Prevention Point
Philadelphia Philadelphia, PA

Lucy Bradley-Springer, PhD, RN, ACRN President,
Association of Nurses in AIDS Care
Denver CO

Javier G. Salazar Acting Director
Government Relations & Public Policy National Minority AIDS Council
Washington, DC

Mark W. Parrino, MPA, President
American Association for the Treatment of Opioid Dependence
New York, NY 10007

Malcolm Dickson
Advocates for Recovery through Medicine (ARM)
Burton, MI

Terri Martinez
Addiction Treatment Watchdog
Platte City, MO

Chris Kelly
Advocates for Recovery through Medicine ARM-DC
Washington, DC

Chapter Pete Prydybasz
Fat Pete Productions
Mohnton, PA

William D. McColl Director of National Affairs Drug Policy Alliance
Washington, DC

Gene Copello, Executive Director
Florida AIDS Action
Tampa, FL.

Don Doty, President
The Georgia Doty health Education Fund
Chicago, Il

Joycelyn Woods, President
National Alliance of Methadone Advocates
New York, NY

Marc Cohen, President
United Foundation for AIDS
Miami, Florida

Top of Page  Back to Legislation Page

Julie Davids, Director
Community HIV/AIDS Mobilization for Power (CHAMP)
New York, NY

Hank Mills, Director
Hepatitis C Action Network
Milwaukee, Oregon.

Frank Pizzoli, Founder
Positive Opportunities
Harrisburg, PA

Lei Chou, Director
The Access Project AIDS Treatment Data Network
New York, NY

Ryan Clary, Senior Policy Advocate
Project Inform
San Francisco, CA

Jessica Guernsey Camargo, MPH, Health Educator
HIV/HCV Community Programs Multnomah County Health Department
Portland, OR

Laurence Pagnoni
Laurence A. Pagnoni & Associates, Inc. (LAPA)
New York, NY

Jules Levin, Executive Director/Founder
National AIDS Treatment Advocacy Project (NATAP)
New York, N.Y.

Fred Schaich, President
International Foundation for Alternative Research in AIDS (IFARA)
Portland, OR

Anthony Gichemi, Outreach Co-coordinator
HIV/AIDS Services
Grand Rapids, MI

Judy Greenspan, Chairperson
HIV/Hepatitis C in Prison Committee California Prison Focus

Dan Homchick, Health Educator/Outreach Specialist
Grays Harbor County Public Health & Social Services
Aberdeen, Washington

Lynda Dee
AIDS Action Baltimore, Inc.
Baltimore, MD

Alex Kral, PhD, Director Urban Health Studies,
University of California,
San Francisco, CA

Don Maison, President and CEO
AIDS Services of Dallas
Dallas, TX

Ajax Greene, CEO
Visionary Health Concepts
New York, NY

Katy Caldwell, Executive Director
Montrose Clinic
Houston, TX

Kris Nyrop
Street Outreach Services
Seattle, WA

John Manzon-Santos, Executive Director
Asian & Pacific Islander Wellness Center
San Francisco CA

Howard Josepher, CSW, Executive Director
Exponents Inc.
NYC, NY.

Bernice Tucker, Founding Director
Women Accepting Responsibility (WAR)

Harry L. Simpson, Director of Substance Abuse Services
Community Health Awareness Group
Detroit, MI.

Annet Davis-Vogel, R.N. M.S.W., Manager Research Projects
University of Pennsylvania HIV Prevention Research Division, Office #4088
Philadelphia, PA

Mysheika LeMaile-Williams, MD, MPH, Medical Director
Eastern STD Clinic
Baltimore, MD

Michael Bethea
Exponents
New York, N.Y

Brian Varner, Director of Treatment Education
Tennessee AIDS Support Services

Robert Greenwald, Director
The Treatment Access Expansion Project (TAEP)

Kenneth I. Freedman, MD, Medical Director
Community Substance Abuse Centers
Hartford, CT

David S. Erickson, Dr. P.H., Director of Education
Texas Liver Coalition
Houston, Texas

Rachel Wilson, Director of Education and Advocacy
Massachusetts Public Health Association
Jamaica Plain, MA

Alice Bell, L.S.W., Coordinator
Prevention Point Pittsburgh
Pittsburgh, PA

Craig Thompson, Executive Director
AIDS Project Los Angeles
Los Angeles, California

Jeff Singer, President and CEO
Health Care for the Homeless, Inc.
Baltimore, MD

Kathy Kilcourse
Vermont People with AIDS Coalition
Montpelier, VT

Mrs. Debbie Delgado - Vega, Founder & CEO
Latino Organization for Liver Awareness
Bronx, NY

Jerry Epstein, Executive Director
Drug Policy Forum of Texas
Houston, Texas

Louis L. Hughes, Jr., Lead Fac.
Out Front and GLCCB
Baltimore, MD

Ken Akinaka, MRA, Co-Founder
Hepatitis Prevention, Education, Treatment and Support Network of HI, and Emerging Needs Committee Church & Society Commission, Harris United Methodist Church
Honolulu, HI

Dawn M. Stewart, Founder, Facilitator
Help & Hope For Hepatitis Support Group
Baltimore, MD

Steve Kersker
Tampa Bay Hepatitis Task Force
Tampa Bay Area, Florida.

Thelma Wright, President/CEO
The Wright Focus Group, Inc.
High Point, NC

Timothy J. Santamour, Executive Director
DanceSafe
NY, NY

Dee Lemmon, Vice Chair
HEALS of North Georgia
Woodstock, GA

Susan G. Chapter, Owner
Look Upon The Horizon-Hepatitis C Support Group
Jacksonville, North Carolina

Barbara J. Turner MD, MSEd Professor of Medicine
Division of General Medicine Director, Primary Care Physician-Scientist Fellowship University of Pennsylvania
Philadelphia, PA

Ronald vander Bosch, RN, MPH
Franklin County Hepatitis C Project
Montague, MA

Linda Wong, Facilitator
HepCats Support Group
Honolulu, Hawaii

Jeffrey L. Reynolds, MPA VP for Public Affairs
Long Island Association for AIDS Care (LIAAC)
Long Island, NY

Bennett H. Klein, Esq. AIDS Law Project Director
Gay & Lesbian Advocates & Defenders
Boston, MA

Magnolia Contreras Director of Public Policy
AIDS Action Committee
Boston, MA

Barry Zevin MD Medical Director
Tom Waddell Health Center Department of Public Health City and County of San Francisco
San Francisco , CA

Anthony Perrone
Massachusetts Veterans Inc
Worcester, MA

Bill Remak, Chairman
California Hepatitis C Task Force
Petaluma, CA

Rachel Wilson
Massachusetts Hepatitis C Coalition
Jamaica Plain, MA

Geoffrey Wilkinson
Massachusetts Public Health Association
Jamaica Plain, MA

Kathy Keough, M.S. Assistant Director of Government & Regulatory Affairs
Massachusetts College of Pharmacy & Health Sciences
Boston, MA

Sheldon H. Barr, Executive Director
Health Care of Southeastern Mass., Inc.
Brockton, MA